Multi-Country Organisations

Intenational Huntington Assocation (IHA)

Website: https://huntington-disease.org/ Email: svein@iha-huntington.org

European Huntington Assocation (EHA)

Website: https://eurohuntington.org/ Email: astri@eurohuntington.org

Factor H (South American Organisation)

Website: https://factor-h.org/ Email: info@factor-h.org

Country Organisations

Australia

South Australia and Northern Territory HD Association

www.huntingtonssant.org.au

Victoria HD Association

www.huntingtonsvic.org.au

Western Australia HD Association

www.huntingtonswa.org.au

New South Wales HD Association

www.huntingtonsnsw.org.au

Queensland HD Association

www.huntingtonsqld.org.au

Tasmania

huntingtonstasmania.org.au

Huntington's Disease Network of Australia

HDNA

Argentina

Email: info@movementdisorders.org ; info@treat-nmd.com

Austria

Östereichische Huntington Hilfe

tel: 43-1-6150 265
Hotline: 0676-730 3794
Email: SHG-Huntington-Wien@gmx.at ; andi.amann@aon.at ; monika.buesel@inode.at ; c1guggen@edv.uni-klu.ac.at Website: www.huntington.at

Belgium Flanders

Huntington Liga

Beatrice De Schepper
Tel: 32 – 9 – 346 8991
Email: bea@eurohuntington.org

Social Service

tel: 32 - 16 452 759
Email: socialedienst@huntingtonliga.be
Website: www.huntingtonliga.be

Belgium Wallonia

Ligue Huntington Francophone Belge

tel: 32 - 4 - 225 8733; Mob: 32-4-92 849 400
Email: info@huntington.be
Website: www.huntington.be

Brasil

ABH - Associacao Brasil Huntington

Tel: 55-11-3280-2248
Email: abh.atendimento@abh.org.br Website: www.abh.org.br Facebook: https://www.facebook.com/AssociacaoBrasilHuntington Instagram: https://www.instagram.com/associacaobrasilhuntington/

ABH Jovem

Instagram: https://www.instagram.com/abhjovem/ Facebook: https://www.facebook.com/abhjovem/

Bulgaria

Bulgarian Huntington Association

Constantine Economides
Tel: 359-886 390 679
Email: info@huntington.bg
Website: http://huntington.bg
Facebook: https://www.facebook.com/huntington.bg

Contact

Nataliya Elenkova Grigorova
Tel: 0000359 886 390679
Email: natalia.grigorova@abv.bg

Canada

Huntington Society Of Canada

tel: 1 - 519 749 7063, fax: 1 - 519 - 749 8965;
Email: info@huntingtonsociety.ca
Website: www.huntingtonsociety.ca

Société Huntington Du Quebec

tel: 514 – 282 4272; Fax: 1-514-937 0082
Email: shq@huntingtonqc.org
Website: www.huntingtonqc.org

Chile

Agrupacion Chilena de Huntington

Tel: 56-9-8429 1291
Tel cel: 9-873 3703
Email executive director Elisabeth Roth: Elisabeth@huntington.cl
President: Rodrigo@huntington.cl
Website: www.huntington.cl

China

Chinese HD Association - Fegxinzi HD Association

Xi Cao
Tel: 0086-15982091701
Email: mamapapa520@hotmail.com
Website: hdcare.org.cn

China - Hong Kong

Contact

Ken To
Tel: 852 – 9707 1405
Email: kensantoso@gmail.com

Colombia

Asociacion Colombianos por la Enfermedad de Huntington (acolpEH)

Email : acolpEH@hotmail.com ; info@ColombiansforHuntingtonDisease.org ; acolpEH@ColombiansforHuntingtonDisease.org Website : www.acolpeh.wix.com

Costa Rica

Contact

Director Huntington foundation: Juan Carlos Angulo: +506 8572 7143 / juankangulo4@gmail.com

Cuba

Contact

Dr. Tatiana Zaldivar Vaillant
tel: 537-8330165
Email: concuba@infomed.sld.cu

Cyprus

Huntington Disease Association of Cyprus

President: Dr George Papantoniou
Email: hdacyprus@outlook.com
Address: 89, Arch. Makarios III Avenue 3020, Limassol, Cyprus
Website:

Czech Republic

Spolecnost pro pomoc pri Huntingtonove chorobe

Tel. +420 723 349 327
Email:; info@huntington.cz / funds@huntington.cz
Website: www.huntington.cz

Chairman: PharmDr. Zdenka Vondrackova
E-mail: Zdenka.Vondrackova@seznam.cz

Denmark

Landsforeningen Huntington Sygdom

Tel: 45-5320 7850
Email: kontor@huntingtons.dk
Website: www.huntingtons.dk

Ecuador

Contact

Mrs Maria Cristina Guerra Villacreses
Tel: 593-2 2170075; Mobile: 08-551 2091
Email: c.g.villacreses@gmail.com

Dr. Paul Guaillasamin (Genetician) : +593 99 291 4446 Dra. Anak Zambrano : anak.zambrano@ute.edu.ec

England & Wales

Huntington’s Disease Association

Tel: 44-151-331 5444; Fax: 44 – 151-331 5441
United Kingdom
Email: info@hda.org.uk
Website: http://www.hda.org.uk

Egypt

Contact

Mr Hany Farid Haleem
Tel: 202-3-571 1379
Cellphone: 20212 3972744
Email: hanyfarid612@yahoo.com

Dr Bahaa Demian Grace
Tel: 202-35724344
Mobile: 20 12/3455662
Emergency: 20126734075
Email: drbahaademian@yahoo.com

Finland

Contact

E-mail: info@huntington.fi
Website: www.huntington.fi
Facebook: www.facebook.com/huntingtonfi

Finnish Parkinson’s Disease Association, Huntington Disease Branch E-mail: info@liikehairio.fi

France

Association Huntington France

Email: huntingtonfrance@wanadoo.fr
Website: http://huntington.fr

Association Huntington Avenir

Tel: 33-4-7832 0285; Fax: 33-4-3742 5015
Email: contact@huntingtonavenir.net

mgarcia@huntingtonavenir.net
Website: www.huntingtonavenir.net

Association Huntington Mont-Blanc

Tel: 06-3652 1085
Email: Huntington.mont.blanc@gmail.com

Huntington Espoir Grand-Est

Tel/fax: 03-8055 5748; Tel: 03-6979 0122
Emails: Sylvie.castella@huntington.asso.fr
secretariat@reseda-bfc.fr
Website: www.huntington.asso.fr

Germany

Deutsche Huntington Hilfe E.V.

tel: 49 - 203 - 22915, fax: 49 - 203 - 22925,
Email: dhh@dhh-ev.de
Website: www.dhh-ev.de
www.selbsthilfenetz.de

Greece

Organisation Of Huntington In Greece

Lydia Veremi
Tel: 1-951 8054; Mobile: 6973517827 or 6946161285
Email: myopas@otenet.gr
lveremi@yahoo.gr

Guatemala

Contact

Dr. González Pérez (genetician) GENÓMICA Diagnóstico genético : ergonzalezflores@centrogenomica.com +502 4217 8439 https://centrogenomica.com/

Hungary

Contact

Department Of Neurology, University Of Szeged
Prof Laszlo Vecsei
Semmelweis Str 6, H6725 Szeged
Tel: +36-62-545351; Fax: +36-62-545 597
Email: vecsei@nepsy.szote.u-szeged.hu

India

Contact

Contact the IHA for information on doctors in India
Email: iha@huntington-assoc.com

Iran

Contact

Farahnaz Noormohammadi
Tel: 0912-401-9421
Email: noor1340@yahoo.com

Ireland

Huntington Disease Association Of Ireland

tel: 353 - 1 872 1303,
Email: info@huntingtons.ie
Website: www.huntingtons.ie

Israel

Israeli HD Association

Dr. Nira Dangoor
tel: 972 - 8 - 859 8573, fax: 972-8-8598573 , Cell 0528384889
Email: niradn@012.net.il
Website: www.huntington.org.il

Italy

Huntington Onlus - The Italian Network of Huntington Disease

Tel: 39 345 498 7911
Email: segreteria@huntington-onlus.it
Website: www.huntington-onlus.it

Associazione Italiana Corea Di Huntington-Roma Onlus

Tel: 39-06-44242033/39-06-44252298; Fax: 39-06-44242033
Email: info@aichroma.com ;
paolazinzi@yahoo.com
wanda.danzi@aichroma.com
Website: www.aichroma.com

Associazione Corea Di Huntington - Napoli

tel: 39-081-5455 213/39-338-8008 372; fax: 39-081-7462 693
Email: aichnapolionlus@gmail.com Website: via Orphanet

Contact

Tel: +39-0815666810 / +39-0815666809
Fax: +39-0815666809
Email: marina.melone@unicampania.it Website: www.orphanet-italia.it

Lega Italiana Ricerca Huntington E Malattia Correlate Onlus

Tel:39-06-4470 2460 / 800 388 330 (free for Italy only)
Email : info@lirh.it
Website : www.lirh.it

Associazione Italiana Huntington Emilia Romagna – Aiher

Antonio Fontana
Email : info@aiher.it; segreteria@aiher.it; presidenza@aiher.it ; antofnt@gmail.com
Tel : 39-0547-335935 ; 39-335-380195
Website : www.aiher.it

Japan

Japanese Huntington’s Disease Network

Tel/Fax: 81 – 3 – 6409 -2079
Email : jhdn@mbd.nifty.com
Website: www.jhdn.org

Lithuania

Huntingtono Ligos Asociacija

Dr Zivile Navikiene

Tel mob: +37-0686 35487
Email: hdasociacija@gmail.com
Website: http://www.hla.lt/
Facebook: https://facebook.com/huntingtonasociacija

Malta

Huntington Support Group Malta

Margaret Parnis England (act as contact person)
tel: 356 9949 3267;
Email: margaretparnisengland@gmail.com

Mexico

Asociacion Mexicana De La Enfermedad De Huntington I.A.P.

tel: 52 - 5424 3325; fax: 52 - 5424 3189
Email: huntingtonmexico@hotmail.com
Website: https://www.huntingtonmexico.org/

Netherlands

Vereniging Van Huntington

tel: 31 - 70 - 314 8888 ;
Email: info@huntington.nl
Website: www.huntington.nl

New Zealand

HDYO NZ

Malvindar Singh-Bains and Leanne Knox - Co Chair
Phone - +64 272 908589
Email - hdyonz1@gmail.com
Facebook: HDYONZ
Website: www.hdyo.co.nz

Huntington’s Disease Association (Auckland) New Zealand

Tel: 09-815 9704 / mobile: 027-432 8255
Email; huntingtonsakld@xtra.co.nz; huntingtons.web@gmail.com Website: www.huntingtons.org.nz

Huntington’s Disease Association (Christchurch) New Zealand

Tel: 3-312 5612
Email: sjgilmour.wellingtonhda@gmail.com ; treasurer.wellingtonhda@gmail.com

Huntington’s Disease Association (Wellington) New Zealand

Tel: 4-569 3252 / mobile 021-344 445
Email: jwigginswellingtonhda@hotmail.com
Info.Wellingtonhda@xtra.co.nz

Northern Ireland

Huntington’s Disease Association Of Northern Ireland

Tel: 44 – 79 82843907
Email: info@hdani.org.uk or sorcha@hdani.org.uk
Website: www.hdani.org.uk

Norway

Landsforeningen For Huntington’s Sykdom

tel: 47 – 902 - 02031, 934-47-795/9020204
Email: leder@huntington.no
Website: www.huntington.no

Oman

Oman Huntington Disease Association

Tel: 968-9289 6363

Pakistan

Huntington Disease Care & Cure Society of Pakistan

tel: 92 - 91 – 528 7855
Email: homeodockent@yahoo.com ;

Peru

Huntington Society Of Peru

Director Huntington Association : Esther Candela : https://huntingtonperu.oits.pe/ +51 956 541536 familiahuntingtonperu@gmail.com

Poland

Polskie Stowarzyszenie Choroby Huntingtona

Tel: 48-22-8464151
Email: kontakt@huntington.pl / d.lis@huntington.pl
Website: www.huntington.pl
Dr Dorota Hoffman-Zacharska /
Email: dhoffman@poczta.wp.pl

Portugal

Associacao Portuguesa De Doentes De Huntington (APDH)

Dr Filipa Julio
Tel: 351-96-252 3161
Email: huntington.coimbra@hotmail.com
Website: www.huntington-portugal.com

Puerto Rico

Fundacion Huntington Puerto Rico

Zoe Cruz
Tel (mobile): +1-787 9414699
Tel: 787-758-2525 (ext 1374/1375)
Email: fundacionHD3@gmail.com

Romania

Huntington Association Romania

Ramona Moldovan
Tel: 0040 – 722 163 425
Email: ramonamoldovan@gmail.com

Russia

Huntington Association Of Russia

Dr Sergey A. Klyushnikov
tel: 7 - 95 490 2221, fax: 7 - 95 - 490 2210
Email: sergeklyush@gmail.com

Scotland

Scottish Huntington’s Association

Tel: +44 141 848 0308
Email: sha-admin@hdscotland.org
Website: www.hdscotland.org

Serbia

Zoran Simonovic

Zoran Simonovic
Tel:+38137410217;fax: +38137410103;mob:+38162209006
Email: zoran.simonovic@gmail.com

Slovakia

Spolecnost Pre Pomoc Pri Huntingtonovej Chorobe V Slovenskej Republike

Jana Pavlikova
Tel: 0475-423856; 09-15800155
Email : jana.pavlikova@pmxmail.sk

Slovenia

Huntington Association Of Slovenia

Tel: 386-1-7566020; mobile: 386-40397289
Fax: 386-1-5603086
Email: ako9@siol.com
jan.kobal@kclj.si

South Africa

Huntington’s Association Of South Africa (HASA)

Tel: 27-11-476 6189; Mbl 1: 27-83 383 1188; Mbl 2: 27-83 555 7757
Email: michaelh@tsdworld.co.za
Website: hd-africa.org

Cape Town Support Group:
Tel: 082-318 3330
Email:

Johannesburg support Group
Tel: 083-304 0671
Email: ungerer777@gmail.com

South Korea

Contact

Dr. Manho Kim
Tel: 82-2-2072 2193; fax: 82-2-3672 7553
Email: kimmanho@snu.ac.kr

Wooseok In
Tel: 82-2-2072 1735; fax: 82-2-7625178
Email: spon13@gmail.com

Spain

Asociacion De Corea De Huntington Espanola

Calle Mercedes Rodriguez Telefono: 671 43 93 33 Mrs Ana Amposta – Neuropsicologa
Email: contacto@e-huntington.es ; sid@usal.es
Website: www.e-huntington.es

Asociación Jóvenes Huntington

Tel: +34 689463417
Email: asun@euro-hd.net
Facebook: https://tinyurl.com/ajhuntington

Sweden

Riksfarbundet Huntingtons Sjukdom (RHS)

Email: susanne.zell@huntington.se
Website: www.huntington.se

Huntington Foreningen I Sverige

Tel: 46 – 8 – 677 7010
Email: info@neuroforbundet.se
Website: www.neuroforbundet.se

Switzerland

Schweizerische Huntington Vereinigung

Tel: 41-79 – 627 3324
Email: info@shv.ch
Website: www.shv.ch

Turkey

Contact

Prof A. Nazli Basak
tel: + 90 - 212 – 359 6679; fax: + 90 - 212 – 3597298
Email: basak@boun.edu.tr
Website: www.alsturkiye.org

United States of America

Huntington’s Disease Society Of America

tel: 1 - 212 242 1968, fax: 1 - 212 - 239 3430
Email: hdsainfo@hdsa.org
Website: http://www.hdsa.org

Help 4 HD International

Website: https://help4hd.org

HD Reach

Email: info@hdreach.org Website: https://hdreach.org

Huntington Study Group

Email: info@hsglimited.org Website: https://huntingtonstudygroup.org

Tray Gray Foundation

Website: https://www.thetreygrayfoundation.org

Uruguay

Contact

Montserrat Martinez
Tel: 5982-409 8234; Fax: 5982-401 3918
Email: montsemora1954@yahoo.com ; lamonse@adinet.com.uy

Venezuela

Asociacion Venezolana De Huntington

Aleska Gonzalez De Zambrano
Tel: +58-212-7517 654; Fax: +58-261 5011
Email: avehun@hotmail.com
Website: http://avehun-venezuela.webnode.com.ve

Contact

Dr Roberto Weiser
tel: 58 - 2 - 991 5731; fax: 58 -2 - 979 0453
Email: rweiser@cantv.net

Zimbabwe

Contact

Manu Prajapati
Tel: 263-9-64470; Fax: 263-9-883067
Email: unampraja@ymail.com