HDYou Community Stories presents “Engaging with the FDA” today at 12 pm EST on Facebook and YouTube.

Big change for the Huntington’s disease community can come from telling your story. Advocates BJ Viau and Seth Rotberg decided to do just that by holding a listening session with the FDA last month. They, along with other community members like Lauren Holder, did so in the hope of encouraging the acceptance of allowing pre-symptomatic community members to participate in clinical trials. Learn more about their story and how you may be able to become involved in the US or how to start the conversation in your own country.

For additional languages and closed captioning, watch on YouTube.

Special thanks to our sponsors: uniQure, Neurocrine Biosciences and Sage Therapeutics.

*The videos will remain available on Facebook and YouTube directly after the premiere.