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HDYO is the only organization who focus solely on supporting young people impacted by HD around the world. Will you help us?

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Who We Serve

November 22, 2021

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

HDYO’s Definition of young people:

  • Kids: 12 & under
  • Teens: 13-17 years old
  • Young Adults: 18-35 years old

HDYO’s Definition of impacted by HD:

  • At-Risk for HD
  • Gene Tested with positive or negative result
  • Caregivers who may or may not be at risk.
  • Those not at risk who have loved ones, friends with HD
  • Juvenile onset HD
  • Pediatric HD
  • Professionals working with families impacted by HD.

We are an official entity in both the USA (501c3 EIN: 45-4955538) and United Kingdom (Charity Commission #1145781). Learn more about our charitable status.

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids Teens Young Adults Parents and Family JoHD Friends Professionals