HDYO Team
February 18, 2022
HDYO has more information about HD available for young people, parents and professionals on our site:
www.hdyo.org
Staff
Our dedicated staff is made of passionate individuals who are here to help in any way we can. Please feel free to reach out to us directly. You can learn more about the HDYO Team on our biographies page.
Jenna Heilman
jenna@hdyo.org
Executive Director
Matt Ellison
matt@hdyo.org
Project Coordinator and Founder
Impacted by HD
Jacky Tse
jacky@hdyo.org
Social Worker
Casey Edwards
casey.edwards@hdyo.org
Study Coordinator - JOIN-HD Registry
Jenna Shea
jen@hdyo.org
Project Coordinator - Mentorship
Impacted by HD
Marisa Pecoraro
marisa@hdyo.org
In-Person Program Coordinator
Board
Executive Committee
Ariana Mullin
ariana.mullin@hdyo.org
Chair
Dr. Kelly Atkins
kelly@hdyo.org
Vice Chair; Co-Chair Research Committee
Trey Randall
trey@hdyo.org
Secretary
Jarrod (Jay) Strydom
jay@hdyo.org
Treasurer
Research Committee
Dr. Bonnie Hennig-Trestman
DrBonnie@hdyo.org
Co-Chair Research Committee
Dr. Lauren Byrne
lauren@hdyo.org
Chief Investigator - JOIN-HD Registry
Impacted by HD
Advocacy & Education Committee
Lauren Youngborg
lauren.youngborg@hdyo.org
Co-Chair, Education
Ashley Clarke
ashley@hdyo.org
Co-Chair, Ambassadors
Impacted by HD
Marketing & Fundraising Committee
Paul Conn
paul.conn@hdyo.org
Co-Chair
Impacted by HD
Matthew Shore
matthew.shore@hdyo.org
Co-Chair
Impacted by HD
Clare Braithwaite
clare@hdyo.org
Co-Chair
Impacted by HD
General Board Members
Jenny Harte
jenny@hdyo.org
Board Member
Advisors
Hayley Hubberstey
hayley@hdyo.org
Emeritus Board Member
Donna Spencer
donna@hdyo.org
Impacted by HD
Committee Members
Research Committee
Dr. Beth Ann Griffin
Senior Statistician, RAND Center for Causal Inference
Impacted by HD
Mustafa Mehkary
PhD Student, University of Toronto
Impacted by HD
Marina Papoutsi
Biomarker scientist, IXICO plc, Honorary senior research fellow, UCL
Bhairavi Srinageshwar
Post-doctoral Research Associate, College of Medicine, Central Michigan University
Education Committee
Erika Brockhoff
Prenatal Genetic Counselor at Mount Sinai West (NY)
Impacted by HD
Wes Solem
Certified Genetic Counselor, HD Genetics
Bhairavi Srinageshwar
Post-doctoral Research Associate, College of Medicine, Central Michigan University
Brittany Stowers
Student Studying Neuroscience and Psychology
Impacted by HD
Jessi Way
Masters of Science, Licensed Professional Counselor
Impacted by HD
Biographies
You can learn more about the HDYO Team on our biographies page.