Multi-Country Organisations

Intenational Huntington Assocation (IHA)

Website: https://huntington-disease.org/ Email: svein@iha-huntington.org

European Huntington Assocation (EHA)

Website: https://eurohuntington.org/ Email: astri@eurohuntington.org

Factor H (South American Organisation)

Website: https://factor-h.org/ Email: info@factor-h.org

Country Organisations

Australia

South Australia and Northern Territory HD Association

www.huntingtonssant.org.au

Victoria HD Association

www.huntingtonsvic.org.au

Western Australia HD Association

www.huntingtonswa.org.au

New South Wales HD Association

www.huntingtonsnsw.org.au

Queensland HD Association

www.huntingtonsqld.org.au

Tasmania

huntingtonstasmania.org.au

Huntington's Disease Network of Australia

HDNA

Argentina

Email: info@movementdisorders.org ; info@treat-nmd.com

Austria

Östereichische Huntington Hilfe

Sibeliusstrasze 9/3/35, 1100 Vienna, Austria
tel: 43-1-6150 265
Hotline: 0676-730 3794
Email: SHG-Huntington-Wien@gmx.at ; andi.amann@aon.at ; monika.buesel@inode.at ; c1guggen@edv.uni-klu.ac.at Website: www.huntington.at

Belgium Flanders

Huntington Liga

Mrs Beatrice De Schepper
Spelonckvaart 30
9180 Moerbeke-Waas, Belgium
Tel: 32 – 9 – 346 8991
Email: bea@eurohuntington.org

Social Service
Krijkelberg 1, B 3360 Bierbeek, Belgium

tel: 32 - 16 452 759
Email: socialedienst@huntingtonliga.be
Website: www.huntingtonliga.be

Belgium Wallonia

Ligue Huntington Francophone Belge

4bis Montagne Ste Walburge, 4000 Liege, Belgium
tel: 32 - 4 - 225 8733; Mob: 32-4-92 849 400
Email: info@huntington.be
Website: www.huntington.be

Brasil

ABH - Associacao Brasil Huntington

Rua Conde de Sao Joaquim, 179 - Bela Vista - CEP 01320-010
Sao Paulo, Brasil
Tel: 55-11-3280-2248
Email: abh.atendimento@abh.org.br Website: www.abh.org.br Facebook: https://www.facebook.com/AssociacaoBrasilHuntington Instagram: https://www.instagram.com/associacaobrasilhuntington/

ABH Jovem

Instagram: https://www.instagram.com/abhjovem/ Facebook: https://www.facebook.com/abhjovem/

Bulgaria

Bulgarian Huntington Association

Ms Constantine Economides
Tel: 359-886 390 679
Email: info@huntington.bg
Website: http://huntington.bg
Facebook: https://www.facebook.com/huntington.bg

Contact

Mrs Nataliya Elenkova Grigorova
Krasno selo 198 Floor 6 Flat 23
Sofia 1618, Bulgaria
Tel: 0000359 886 390679
Email: natalia.grigorova@abv.bg

Canada

Huntington Society Of Canada

151 Frederickstreet, Suite 400, N2h 2m2 Kitchener, Ontario, Canada
tel: 1 - 519 749 7063, fax: 1 - 519 - 749 8965;
Email: info@huntingtonsociety.ca
Website: www.huntingtonsociety.ca

Société Huntington Du Quebec

2300 Boulevard René Lévesque O
Montréal, Quebec, H3h 2r5
tel: 514 – 282 4272; Fax: 1-514-937 0082
Email: shq@huntingtonqc.org
Website: www.huntingtonqc.org

Chile

Agrupacion Chilena de Huntington

La Ramada 11694, Las Condes
Santiago, Chile
Tel: 56-9-8429 1291
Tel cel: 9-873 3703
Email executive director Elisabeth Roth: Elisabeth@huntington.cl
President: Rodrigo@huntington.cl
Website: www.huntington.cl

China

Chinese HD Association - Fegxinzi HD Association

Mr Xi Cao
724 Hub, ShenFu Building
No. 206 Rushan Road, Pudong District
Tel: 0086-15982091701
Email: mamapapa520@hotmail.com
Website: hdcare.org.cn

China - Hong Kong

Contact

Ken To
Room 1314, Lung Chu House
Lung Poon Court
Diamond Hill
Kowloon, Hong Kong
Tel: 852 – 9707 1405
Email: kensantoso@gmail.com

Colombia

Asociacion Colombianos por la Enfermedad de Huntington (acolpEH)

Email : acolpEH@hotmail.com ; info@ColombiansforHuntingtonDisease.org ; acolpEH@ColombiansforHuntingtonDisease.org Website : www.acolpeh.wix.com

Costa Rica

Contact

Director Huntington foundation: Juan Carlos Angulo: +506 8572 7143 / juankangulo4@gmail.com

Cuba

Contact

Grupo Multidisciplinario Para La Atención A Pacientes Y Familiares Con Diagnóstico De Enfermedad De Huntington
Jefa Departamento Neurogenetica
Instituto De Neurologia Y Neurocirurgia
Dr. Tatiana Zaldivar Vaillant
Calle 29 Esq D.Vedado. Plaza De La Revolucion
Havana City CP10400 CUBA
tel: 537-8330165
Email: concuba@infomed.sld.cu

Cyprus

Huntington Disease Association of Cyprus

President: Dr George Papantoniou
Email: hdacyprus@outlook.com
Address: 89, Arch. Makarios III Avenue 3020, Limassol, Cyprus
Website:

Czech Republic

Spolecnost pro pomoc pri Huntingtonove chorobe

Velke Namesti 37
500 03 Hradec Kralove
Czech Republic

Tel. +420 723 349 327
Email:; info@huntington.cz / funds@huntington.cz
Website: www.huntington.cz

Chairman: PharmDr. Zdenka Vondrackova
E-mail: Zdenka.Vondrackova@seznam.cz

Denmark

Landsforeningen Huntington Sygdom

Bystaevneparken 23,, 701; DK-2700 Bronshoj, Denmark
Tel: 45-5320 7850
Email: kontor@huntingtons.dk
Website: www.huntingtons.dk

Ecuador

Contact

Mrs Maria Cristina Guerra Villacreses
Mindo, Ecuador
Tel: 593-2 2170075; Mobile: 08-551 2091
Email: c.g.villacreses@gmail.com

Dr. Paul Guaillasamin (Genetician) : +593 99 291 4446 Dra. Anak Zambrano : anak.zambrano@ute.edu.ec

England & Wales

Huntington’s Disease Association

Suite 24 Liverpool Science Park
Innovation Centre 1
131 Mount Pleasant
L3 5TF Liverpool
Tel: 44-151-331 5444; Fax: 44 – 151-331 5441
United Kingdom
Email: info@hda.org.uk
Website: http://www.hda.org.uk

Egypt

Contact

Mr Hany Farid Haleem
6 Omraniastreet – Omrania
GIZA 12211 – CAIRO, Egypt
Tel: 202-3-571 1379
Cellphone: 20212 3972744
Email: hanyfarid612@yahoo.com

Dr Bahaa Demian Grace
Kasr Alaini College of Medicine
21 Mourad Street; apt 11Giza
Cairo, Egypt
Tel: 202-35724344
Mobile: 20 12/3455662
Emergency: 20126734075
Email: drbahaademian@yahoo.com

Finland

Contact

Huntington Yhdistys ry c/o Suomen Parkinsson-liitto ry
Suvilinnantie 2
PL 905
20101 Turku
Finland
E-mail: info@huntington.fi
Website: www.huntington.fi
Facebook: www.facebook.com/huntingtonfi

Finnish Parkinson’s Disease Association, Huntington Disease Branch E-mail: info@liikehairio.fi

France

Association Huntington France

42, 44 Rue Du Chateau Des Rentiers, 75013 Paris, France
Tel: 33 1 - 5360 0879; Fax: 33 - 1- 5360 0899
Email: huntingtonfrance@wanadoo.fr
Website: http://huntington.fr

Association Huntington Avenir

5 rue Milton Friedman
ZI Montbertrand
38230 Charvieu Chavagneux, France
Tel: 33-4-7832 0285; Fax: 33-4-3742 5015
Email: contact@huntingtonavenir.net

mgarcia@huntingtonavenir.net
Website: www.huntingtonavenir.net

Association Huntington Mont-Blanc

333 Rue Pellissier – 74700 Sallanches, France
Tel: 06-3652 1085
Email: Huntington.mont.blanc@gmail.com

Huntington Espoir Grand-Est

Siege: 30 Rue de líris – 68150 Ribeauville, France
Secretariat: 5 Rue de la Chaumiere – 21240 Talant,
Tel/fax: 03-8055 5748; Tel: 03-6979 0122
Emails: Sylvie.castella@huntington.asso.fr
secretariat@reseda-bfc.fr
Website: www.huntington.asso.fr

Germany

Deutsche Huntington Hilfe E.V.

Geschaefts- Und Beratungsstelle

Falkstrasse 73-77, D 47058
Duisburg, Germany
tel: 49 - 203 - 22915, fax: 49 - 203 - 22925,
Email: dhh@dhh-ev.de
Website: www.dhh-ev.de
www.selbsthilfenetz.de

Greece

Organisation Of Huntington In Greece

Mrs Lydia Veremi
Hydras 13; 176-76 Athens, Greece
Tel: 1-951 8054; Mobile: 6973517827 or 6946161285
Email: myopas@otenet.gr
lveremi@yahoo.gr

Guatemala

Contact

Dr. González Pérez (genetician) GENÓMICA Diagnóstico genético : ergonzalezflores@centrogenomica.com +502 4217 8439 https://centrogenomica.com/

Hungary

Contact

Department Of Neurology, University Of Szeged
Prof Laszlo Vecsei
Semmelweis Str 6, H6725 Szeged
Tel: +36-62-545351; Fax: +36-62-545 597
Email: vecsei@nepsy.szote.u-szeged.hu

India

Contact

Contact the IHA for information on doctors in India
Email: iha@huntington-assoc.com

Iran

Contact

Mrs Farahnaz Noormohammadi
Shahrara Street
Mojtama Nastran Block D 54
Tehran –Iran
Tel: 0912-401-9421
Email: noor1340@yahoo.com

Ireland

Huntington Disease Association Of Ireland

Carmichael Centre, North Brunswickstreet, Dublin 7, Ireland
tel: 353 - 1 872 1303,
Email: info@huntingtons.ie
Website: www.huntingtons.ie

Israel

Israeli HD Association

Dr. Nira Dangoor
3 LUBEZKY ST, GEDERA 7042004, ISRAEL
tel: 972 - 8 - 859 8573, fax: 972-8-8598573 , Cell 0528384889
Email: niradn@012.net.il
Website: www.huntington.org.il

Italy

Huntington Onlus - The Italian Network of Huntington Disease

Piazzale Gambara 7/9
20122 Milano
Tel: 39 345 498 7911
Email: segreteria@huntington-onlus.it
Website: www.huntington-onlus.it

Associazione Italiana Corea Di Huntington-Roma Onlus

Via Nomentana 56, 00161 Roma, Italy
Tel: 39-06-44242033/39-06-44252298; Fax: 39-06-44242033
Email: info@aichroma.com ;
paolazinzi@yahoo.com
wanda.danzi@aichroma.com
Website: www.aichroma.com

Associazione Corea Di Huntington - Napoli

Policlinio Federico Ii, Clinica Neurologica - Ed17
Via Pansini 5, 80131 Napoli, Italy
tel: 39-081-5455 213/39-338-8008 372; fax: 39-081-7462 693
Email: aichnapolionlus@gmail.com Website: via Orphanet

Contact

Seconda Universita Degli Studi di Napoli-Azienda Ospedalira Universitaria
Policlinico Federico II, I Clinica Neurologica
Centro di Referimento per le Malattie Neurologische Rare
Isola 8, Edificio 10 Via Sergio Pansini
80131 Napoli, Italy
Tel: +39-0815666810 / +39-0815666809
Fax: +39-0815666809
Email: marina.melone@unicampania.it Website: www.orphanet-italia.it

Lega Italiana Ricerca Huntington E Malattia Correlate Onlus

Business Office: Via Dei Mille 41/A ; 00185 Rome, Italy
Tel:39-06-4470 2460 / 800 388 330 (free for Italy only)
Email : info@lirh.it
Website : www.lirh.it

Associazione Italiana Huntington Emilia Romagna – Aiher

Mr Antonio Fontana
Via Romea n 1140, 47522 Cesena, Italy
Email : info@aiher.it; segreteria@aiher.it; presidenza@aiher.it ; antofnt@gmail.com
Tel : 39-0547-335935 ; 39-335-380195
Website : www.aiher.it

Japan

Japanese Huntington’s Disease Network

C/O Department of Public Policy
4-6-1 Shirokanedai
Minato-ku, Tokyo 108-8639 Japan
Tel/Fax: 81 – 3 – 6409 -2079
Email : jhdn@mbd.nifty.com
Website: www.jhdn.org

Lithuania

Huntingtono Ligos Asociacija

Mrs Dr Zivile Navikiene
22 Zemuogiu Street,
Kulautuva Village
Kaunas Region LT 53093
Tel mob: +37-0686 35487
Email: hdasociacija@gmail.com
Website: http://www.hla.lt/
Facebook: https://facebook.com/huntingtonasociacija

Malta

Huntington Support Group Malta

Mrs Margaret Parnis England (act as contact person)
4 Lion Street, Floriana, MALTA G.C.
tel: 356 9949 3267;
Email: margaretparnisengland@gmail.com

Mexico

Asociacion Mexicana De La Enfermedad De Huntington I.A.P.

Tesorelos 97, Toriello Guerra Del. Tlalpan, 14050 Mexico City, Mexico
tel: 52 - 5424 3325; fax: 52 - 5424 3189
Email: huntingtonmexico@hotmail.com
Website: https://www.huntingtonmexico.org/

Netherlands

Vereniging Van Huntington

Zuid Hollandlaan 7, 2596 AL Den Haag, Netherlands
tel: 31 - 70 - 314 8888 ;
Email: info@huntington.nl
Website: www.huntington.nl

New Zealand

HDYO NZ

Malvindar Singh-Bains and Leanne Knox - Co Chair
Phone - +64 272 908589
Email - hdyonz1@gmail.com
Facebook: HDYONZ
Website: www.hdyo.co.nz

Huntington’s Disease Association (Auckland) New Zealand

Neurological Support Centre
7a Taylors Road
Morningside, Auckland
or
PO Box 16181
Sandringham, Auckland, New Zealand
Tel: 09-815 9704 / mobile: 027-432 8255
Email; huntingtonsakld@xtra.co.nz; huntingtons.web@gmail.com Website: www.huntingtons.org.nz

Huntington’s Disease Association (Christchurch) New Zealand

Chirstchurch Community House
141 Hereford Street
Christchurch, New Zealand
Tel: 3-312 5612
Email: sjgilmour.wellingtonhda@gmail.com ; treasurer.wellingtonhda@gmail.com

Huntington’s Disease Association (Wellington) New Zealand

Postbox 30420
Lower Hutt 5040, New Zealand
Tel: 4-569 3252 / mobile 021-344 445
Email: jwigginswellingtonhda@hotmail.com
Info.Wellingtonhda@xtra.co.nz

Northern Ireland

Huntington’s Disease Association Of Northern Ireland

53 Andersonstown Road
Belfast
BT11 9AG
Northern Ireland
Tel: 44 – 79 82843907
Email: info@hdani.org.uk or sorcha@hdani.org.uk
Website: www.hdani.org.uk

Norway

Landsforeningen For Huntington’s Sykdom

Grimsvollen 29, 4616 Kristiansand, Norway

tel: 47 – 902 - 02031, 934-47-795/9020204
Email: leder@huntington.no
Website: www.huntington.no

Oman

Oman Huntington Disease Association

Oman’s Huntington Association
P.O.Box 1331 Postal Code 111
Sultanate of Oman
Tel: 968-9289 6363

Pakistan

Huntington Disease Care & Cure Society of Pakistan

2 Sawati Gate, Peshawar Cantt, Pakistan
tel: 92 - 91 – 528 7855
Email: homeodockent@yahoo.com ;

Peru

Huntington Society Of Peru

Director Huntington Association : Esther Candela : https://huntingtonperu.oits.pe/ +51 956 541536 familiahuntingtonperu@gmail.com

Poland

Polskie Stowarzyszenie Choroby Huntingtona

Rekodzielnicza 17a, 02-267 Warsaw, Poland
Tel: 48-22-8464151
Email: kontakt@huntington.pl / d.lis@huntington.pl
Website: www.huntington.pl
Mrs Dr Dorota Hoffman-Zacharska /
Email: dhoffman@poczta.wp.pl

Portugal

Associacao Portuguesa De Doentes De Huntington (APDH)

Dr Filipa Julio
IBILI – Azinhaga de Sta.Comba
3000-354 Coimbra, Portugal
Tel: 351-96-252 3161
Email: huntington.coimbra@hotmail.com
Website: www.huntington-portugal.com

Puerto Rico

Fundacion Huntington Puerto Rico

Ms Zoe Cruz
2051 Jose Fidalgo Dias
Caldas San Juan PR 00926
Tel (mobile): +1-787 9414699
Tel: 787-758-2525 (ext 1374/1375)
Email: fundacionHD3@gmail.com

Romania

Huntington Association Romania

Mrs Ramona Moldovan
Tel: 0040 – 722 163 425
Email: ramonamoldovan@gmail.com

Russia

Huntington Association Of Russia

Dr Sergey A. Klyushnikov
Inst Of Neurology, Dept Of Neurogenetics, Russian Academy Of Medical Sciences
Volokolamskoye Shosse 80, 125367 Moscow, Russia
tel: 7 - 95 490 2221, fax: 7 - 95 - 490 2210
Email: sergeklyush@gmail.com

Scotland

Scottish Huntington’s Association

Business First
Linwood Point, Paisley, PA1 2FB
Tel: +44 141 848 0308
Email: sha-admin@hdscotland.org
Website: www.hdscotland.org

Serbia

Mr Zoran Simonovic

Mr Zoran Simonovic
Psihosocijalni savetnik
Blagoja Parovica BB
37000 Krusevac, Srbija,
Serbia
Tel:+38137410217;fax: +38137410103;mob:+38162209006
Email: zoran.simonovic@gmail.com

Slovakia

Spolecnost Pre Pomoc Pri Huntingtonovej Chorobe V Slovenskej Republike

Mrs Jana Pavlikova
Klokocova 737, 98101 Hnust´a
Slovakia
Tel: 0475-423856; 09-15800155
Email : jana.pavlikova@pmxmail.sk

Slovenia

Huntington Association Of Slovenia

VRHOVCEVA 13d, LOG PRI BREZOVICI 1358, SLOVENIA
Tel: 386-1-7566020; mobile: 386-40397289
Fax: 386-1-5603086
Email: ako9@siol.com
jan.kobal@kclj.si

South Africa

Huntington’s Association Of South Africa (HASA)

219 Johannesstreet, Fairland,2170 South Africa
Tel: 27-11-476 6189; Mbl 1: 27-83 383 1188; Mbl 2: 27-83 555 7757
Email: michaelh@tsdworld.co.za
Website: hd-africa.org

Cape Town Support Group:
Tel: 082-318 3330
Email:

Johannesburg support Group
Tel: 083-304 0671
Email: ungerer777@gmail.com

South Korea

Contact

Dr. Manho Kim
Dept Of Neurology, Seoul National University Hospital
101 Daehakro, CHONGNOKU
Seoul 110-744, South Korea
Tel: 82-2-2072 2193; fax: 82-2-3672 7553
Email: kimmanho@snu.ac.kr

Mr Wooseok In
Dept Of Neurology, Seoul National University Hospital
101 Daehakro, Chongnoku
Seoul 110-744, South Korea
Tel: 82-2-2072 1735; fax: 82-2-7625178
Email: spon13@gmail.com

Spain

Asociacion De Corea De Huntington Espanola

Calle Mercedes Rodriguez 16 Local
28044 Madrid
España
Telefono: 671 43 93 33 Mrs Ana Amposta – Neuropsicologa
Email: contacto@e-huntington.es ; sid@usal.es
Website: www.e-huntington.es

Asociación Jóvenes Huntington

Calle Cervera 77, 4º derecha, 28033 - Madrid
Tel: +34 689463417
Email: asun@euro-hd.net
Facebook: https://tinyurl.com/ajhuntington

Sweden

Riksfarbundet Huntingtons Sjukdom (RHS)

Email: susanne.zell@huntington.se
Website: www.huntington.se

Huntington Foreningen I Sverige

C/o NHR
Postbox 490 84
100 28 Stockholm. Sweden
Tel: 46 – 8 – 677 7010
Email: info@neuroforbundet.se
Website: www.neuroforbundet.se

Switzerland

Schweizerische Huntington Vereinigung

Association Huntington-Suisse (AHS)
Swiss Huntington’s Association
Feldguetliweg 75
8706 Feldmeilen, Switzerland
Tel: 41-79 – 627 3324
Email: info@shv.ch
Website: www.shv.ch

Turkey

Contact

Prof A. Nazli Basak
Bogazici University, Dept Of Molecular Biology & Genetics
80815 Bebek - Istanbul, Turkey
tel: + 90 - 212 – 359 6679; fax: + 90 - 212 – 3597298
Email: basak@boun.edu.tr
Website: www.alsturkiye.org

United States of America

Huntington’s Disease Society Of America

505 Eight Avenue, Suite 902, NEW YORK NY 10018, USA
tel: 1 - 212 242 1968, fax: 1 - 212 - 239 3430
Email: hdsainfo@hdsa.org
Website: http://www.hdsa.org

Help 4 HD International

Website: https://help4hd.org

HD Reach

Email: info@hdreach.org Website: https://hdreach.org

Huntington Study Group

Email: info@hsglimited.org Website: https://huntingtonstudygroup.org

Tray Gray Foundation

Website: https://www.thetreygrayfoundation.org

Uruguay

Contact

Mrs Montserrat Martinez
Yaro 1038, Ap 2, Cp 11200 Montevideo, Uruguay
Tel: 5982-409 8234; Fax: 5982-401 3918
Email: montsemora1954@yahoo.com ; lamonse@adinet.com.uy

Venezuela

Asociacion Venezolana De Huntington

Mrs Aleska Gonzalez De Zambrano
Av Principal de Colinas de Bello Monte
Calle Voltaire, Edificio-Palpoc, piso4, Apt 41, Parroquia el Recreo
1050 D.C. Caracas, Venezuela
Tel: +58-212-7517 654; Fax: +58-261 5011
Email: avehun@hotmail.com
Website: http://avehun-venezuela.webnode.com.ve

Contact

Dr Roberto Weiser
Hospital Universitario De Caracas
Postbox 80207, 1080 Caracas, Venezuela
tel: 58 - 2 - 991 5731; fax: 58 -2 - 979 0453
Email: rweiser@cantv.net

Zimbabwe

Contact

Mr. Manu Prajapati
13/23 Rd Ave, Famona Bulawayo, Zimbabwe
Tel: 263-9-64470; Fax: 263-9-883067
Email: unampraja@ymail.com